It's Ok To Skip This Post.
The baby is not doing well.
His brain is still producing fluid, causing the skull to enlarge and deform even more. He's waiting for surgery to relieve some of the pressure on the brain. The MRI's and other tests show that the brain couldn't form correctly and that there's barely any gray matter. The baby is blind and deaf. He's unable to breathe on his own. Overnight one of his lungs collapsed. Doctors have no idea if he will live through the surgery so my brother had him baptized.
My mom says that you can tell the baby is trying to cry and can't. Doctors let her soothe him through the incubator. She said that he reacted somewhat to her touch.
Also, my brother hasn't been able to work. He won't be paid for the time he's missing. He lives about an hour outside of Pittsburg (where the baby is). The Ronald McDonald House that he's was supposed to be staying is full (the baby came earlier than expected) so he has to make the choice of staying at a hotel or leaving and spending money on gas to get him back and forth. His car has no heat in it. My mother's boyfriend gave my brother money to get a tire fixed yesterday. They have nothing in the way of savings or money coming in. I can't even imagine how much the hospital bill is going to be. (I know my kid was 15K and he was born healthy.)
This entire situation is breaking my heart.
How do I help? How do I make things easier for my brother and his wife?? Aside from sending them a ton of cash- which we don't have, but we're sending some, I can't do anything to make it better.
Thanks for the thoughts left in comments and by email. I'll make sure my family sees them all. At this point, any light is better than the darkness.